On August 11th Jayden was diagnosed with Acute Lymphoblastic Leukemia
Jayden is my oldest son and he is 4 years old. On August 11th he was diagnosed with Acute Lymphoblastic Leukemia. We went to the doctor’s office in suspicion of him being anemic but our world was quickly turned upside down. We live in Myrtle Beach and travel to Charleston where he gets treatment at MUSC. The induction period was very hard for us since Jayden was neutropenic and not allowed to leave the hospital until his counts rose. We were there for about a month until we were discharged. We were stressing about the health of Jayden along with trying to find someone to watch our one year old and also dealing with a high risk pregnancy. It was a crazy month for us. After induction chemo we were told Jayden showed no more leukemia cells in his bone marrow making us believe he had achieved remission, but a few days later the bone marrow that was sent to John Hopkins came back stating there was still .05% of leukemia cells still in his bone marrow. We were upset but glad that the amount of leukemia cells were under 1%.
We are continuing to travel to MUSC once a week for clinic for Jayden as he gets chemo and we travel another time as I have to be seen at MUSC for my high risk pregnancy. Through all of this, my husband has been trying to go to work as much as possible but with induction chemo he wasn’t able to work for a month. And with not working for a month bills slowly start to pile up and then next month’s bills are due again. As we struggle to get back to a somewhat “normal” routine getting help for this Christmas would be a huge blessing for us.
With a 4 year old fighting for his life, a 1 year old toddler, and another baby on the way life is a bit stressful, but we are thankful that Jayden is responding so well to treatment. He is a good boy and is always so happy, even with treatment. Right now with his treatment he has to get 4 shots of chemo a week for the next 2 weeks. He did amazing the first week. I can’t even imagine what it is like for him. Me being diagnosed with gestational diabetes it hurts to give myself insulin everyday along with getting a progesterone injection one a week. He is only 4 years old and has to endure so much.
Jayden tries to be the active boy he once was before cancer took over his body. He loves karate, doing puzzles, painting, playing with trains, and watching Disney movies. He also absolutely loves making new friends and playing with them. He was so excited to finally start school this year and to make friends but since his diagnosis, he won’t be able to go at all for his pre k this year.