Emma is Nicholas’ little sister. Emma is a teenager and loves Vera Bradley.
Nicholas is a very active 11year old. He was diagnosed in February of 2012 when he was just 5 with ALL B-cell Leukemia. Nicholas went through 3 years of some very tough chemotherapy and was cancer free in April of 2015. In August of 2015, his port was removed. Around Thanksgiving of 2015, we started to notice some mobility problems. In December of 2015, he was admitted for tests and a MRI. Nothing came up in the MRI.
In January of 2016, his mobility continued to worsen, and he started to have problems seeing. Another MRI was scheduled the day before I had to leave to go out of town for my grandmother’s funeral. The day I got back Nick was admitted to the hospital and was re-diagnosed with Leukemia again. This was a big shock to all of us and couldn’t believe we were going to have to go through this all over again. The first 3 years were tough on us as it was and now were faced with going through it again. I had to stop working, as his hospital stays were becoming unpredictable. This treatment plan was a lot worse than the first one.
This diagnosis came back after his spinal fluid was tested and had affected his optical nerves. He has lost most of his sight in his left eye and now the doctors are trying to keep his eye sight in his right eye. He’s had several spinal taps to check pressure and release spinal fluid. We have to follow up with his Neuro-Ophthalmologist every 3-4 weeks just to make sure there are no changes and things stay stable. Right now, we really don’t know what to do. He has a MRI scheduled in a couple weeks and then we will know why his spinal fluid/pressure is still so high. Then the neurosurgeons will have to decide what the next steps will be so this sweet boy can finally have a life outside of the hospital.
Nick also has a sister and this has been very tough on her. She is a teenager and not having her mom around is very hard. The times we have together at home are cherished and we enjoy all the time we can get together. You are wonderful for helping us this Christmas. We are so grateful for your help!